|
Fisherman's Cottage by Harald Sohlberg |
So teach us to number our days that we may get a heart of
wisdom...Satisfy us in the morning with your steadfast love, that we may
rejoice and be glad all our days...Let the favor of the Lord our God be
upon us, and establish the work of our hands upon us; yes, establish
the work of our hands! (Psalm 90:12, 14, 17)
In April 2012, I was diagnosed with musK myasthenia gravis, a
neuro-muscular, auto immune disorder that greatly compromised the strength of my voluntary muscles. Without treatment, I would be feeling
tired and weak all the time—seeing double, having difficulty keeping
my eyelids up, swallowing, walking, holding my head, speaking, and breathing. The first symptom of double vision manifested
itself in November 2011, soon to be followed by others, one
after another. In the months prior to proper diagnosis and treatment, I
was quite afraid, not knowing what to expect as the muscles of
my body shut down one after another.
Since the medication kicked in, I have been able to function
better, some days better than others. When I am feeling well, I
forget (and let those around me forget) that I have this chronic
illness, and that I am artificially propped up by steroids. I did not want MG to
define me, determined to live life as normally as I had been, adamant
about not letting it limit me.
Lately, however, I am beginning to question the wisdom of it all.
Yes, MG does not define me, but like it or not, it is as much a part of who I am now as my age, ethnicity, marital status, etc. As a married woman, for example, my lifestyle
is different from that of a single woman in many respects. As someone living with MG, why do I think I could live life like I used to? Or worse, live life like others who are in good health?
Instead of
battling my new status, I need to learn to embrace it with grace. It will hopefully cut down on the lament and the envy.
It is in accepting the limits that this sickness has set on me that I can begin to live life fully within its constraints. It will not be the
life I used to have as I am no longer the physically healthy me. But I can become a
better me by accepting and living within my new limitations. There will be times I will disappoint those around me, especially myself, because we
live in a world that values outward accomplishment and activity, both of which will now be much curtailed for me.
Living with MG happily allows me to lead a more contemplative life. The need to close my eyes throughout the day
provides me with time to think and especially to pray. Because of
my limited energy, I am now forced to eliminate or restrict unnecessary
activities and concerns. To conserve the
strength of my eyes, I learn to rely more on my ears--to listen to the
Bible, to books like
Middlemarch read by Juliet Stevenson, to sermons by Sinclair Ferguson and Tim Keller, and to the great music of Chopin, Rachmaninoff, and
Schubert. Though my voice may sound crackly and my words garbled at
times, I can still laugh (though crookedly) and jibber-jabber with family and friends (maybe not for long nor with as much wit!).
And above
all, the constant need to rest assures me of time alone with my God, to
come to him for love, respite, comfort, and strength...to reach up to my Heavenly Father for his warm, loving embrace throughout the day!
I say, that sounds to me like a pretty full and special way to live!